WHAT ARE POTENTIAL DISADVANTAGES/ RISKS TO PARTICIPANTS?
There are no expected risks for participants who take part in this study. However, some participants may experience some discomfort answering questions about their own mortality or inconvenienced at having given up some of their time to participate in the research. If a participant does experience any discomfort due to participation in this research, they will be able to miss out discussions, questions or to withdraw from the study without providing a reason.
Moreover, for students from the University of Roehampton there is no compulsion or academic pressure to take part in the project, and should students decline to participate or subsequently withdraw, their course marks will not be adversely affected.
WHAT ARE POTENTIAL BENEFITS TO PARTICIPANTS?
There is no direct benefit to taking part in this study, although some people find it useful to reflect on their personal experiences. The information gathered from this research will contribute towards improving our understanding of experiences of one’s own mortality and its impact on mental health. Prospectively, the measurement could contribute to enhancement of counselling provision.
All information provided will be kept confidential, and only accessible to members of the research team. All collection, storage and processing of data will comply with the principles of the Data Protection Act 1998, and has been approved under the procedures of the University of Roehampton’s Ethics Committee. All of the information provided will be stored securely and, where possible, anonymised. Under no circumstances will identifiable responses be provided to any third party. All data included in the publication or presentation of this research, and any subsequent research publications, will be fully anonymised to ensure that no individual is identifiable. Limits to confidentiality will apply in situations where research participants disclose information that they or someone else is at risk of harm. In such situations, it is the ethical obligation of the researcher to follow safeguarding procedures and where appropriate to disclose information to the appropriate authorities. In such situations, where possible, this will be discussed with participants before a suitable course of action is taken.
ANONYMITY AND DATA STORAGE
All data generated from this study will be stored securely to the highest possible standard of confidentiality. Anonymised data will be stored for an indefinite period of time following the study, and may be used for publication, presentation, or for subsequent research projects or data analyses. Audio recordings will be destroyed after ten years, in which time they might be used for other research projects and data analyses (at the discretion of the researcher).
DISSEMINATION OF FINDINGS
The results of this research study will be written up in partial fulfilment of the requirements for the Doctorate in Counselling Psychology from the University of Roehampton. The results of this research may be published in academic journals or presented at conferences.