About the research

ONLINE SURVEY

- If you are aged 18 and above and
- had no near death experiences in the last two years and
- no losses of loved ones in the last year,

please visit the link ONLINE SURVEY in order to take part in our online survey.

The inclusion criteria are based on the focus of our study. They do not imply that experiences of people who do not meet the criteria are less valuable.

INVESTIGATOR:

Egle Meistaite, Counselling Psychology doctorate student at the University of Roehampton.

RESEARCH TITLE:

Experiences of Personal Mortality Survey

BRIEF DESCRIPTION OF THE RESEARCH PROJECT:

HOW DO WE MAKE SENSE OF OUR MORTALITY?

Does facing death help us make the most of our lives?
Or do we deny an awareness of it?
How do we deal with the reality of the finiteness of life?

People's relationship with their personal mortality does not begin when they learn that they have a fatal illness. We all know that our life is inevitably moving towards death and it can bring forth different experiences, feelings and thoughts.

THE AIM: we are currently developing a self-report measure to explore answers to the above-mentioned questions. It will help us to gain a more complex understanding of the multiple ways in which people may relate to their death, and also if these experiences may help them to live a meaningful and satisfying life. Through deeper explorations of these processes, we hope to be able to contribute to a better knowledge of how people can be helped in therapy.

Organisators

Who is organising the research?
&
Data protection
Please note

The research for this project was submitted for ethics consideration under the reference PSYC 16/ 226 in the Department of Psychology and was approved under the procedures of the University of Roehampton’s Ethics Committee on 09.07.19.

The research complies with the principles of the EU General Data Protection Regulation and the UK Data Protection Act 2018, and has been approved under the procedures of the University of Roehampton’s Ethics Committee. Please visit the link The Research Privacy Notice. It provides updated information to research participants on how the personal data is used.

If you have any questions regarding this study, please contact the principal investigator. If you have a concern about any aspect of your participation or any other queries you can also contact the Director of Studies. However, if you would like to contact an independent party please contact the Head of Department.

  • Main Investigator

    Egle Meistaite

    Director of Studies

    Dr Gina Pauli

    Co-supervisor

    Prof Mick Cooper

    Head of Department

    Dr Janek Dubowski

Contact

Info

WHAT ARE POTENTIAL DISADVANTAGES/ RISKS TO PARTICIPANTS?

There are no expected risks for participants who take part in this study. However, some participants may experience some discomfort answering questions about their own mortality or inconvenienced at having given up some of their time to participate in the research. If a participant does experience any discomfort due to participation in this research, they will be able to miss out discussions, questions or to withdraw from the study without providing a reason.

Moreover, for students from the University of Roehampton there is no compulsion or academic pressure to take part in the project, and should students decline to participate or subsequently withdraw, their course marks will not be adversely affected.

WHAT ARE POTENTIAL BENEFITS TO PARTICIPANTS?

There is no direct benefit to taking part in this study, although some people find it useful to reflect on their personal experiences. The information gathered from this research will contribute towards improving our understanding of experiences of one’s own mortality and its impact on mental health. Prospectively, the measurement could contribute to enhancement of counselling provision.

CONFIDENTIALITY

All information provided will be kept confidential, and only accessible to members of the research team. All collection, storage and processing of data will comply with the principles of the Data Protection Act 1998, and has been approved under the procedures of the University of Roehampton’s Ethics Committee. All of the information provided will be stored securely and, where possible, anonymised. Under no circumstances will identifiable responses be provided to any third party. All data included in the publication or presentation of this research, and any subsequent research publications, will be fully anonymised to ensure that no individual is identifiable. Limits to confidentiality will apply in situations where research participants disclose information that they or someone else is at risk of harm. In such situations, it is the ethical obligation of the researcher to follow safeguarding procedures and where appropriate to disclose information to the appropriate authorities. In such situations, where possible, this will be discussed with participants before a suitable course of action is taken.

ANONYMITY AND DATA STORAGE

All data generated from this study will be stored securely to the highest possible standard of confidentiality. Anonymised data will be stored for an indefinite period of time following the study, and may be used for publication, presentation, or for subsequent research projects or data analyses. Audio recordings will be destroyed after ten years, in which time they might be used for other research projects and data analyses (at the discretion of the researcher).

DISSEMINATION OF FINDINGS

The results of this research study will be written up in partial fulfilment of the requirements for the Doctorate in Counselling Psychology from the University of Roehampton. The results of this research may be published in academic journals or presented at conferences.

Info

WHAT ARE POTENTIAL DISADVANTAGES/ RISKS TO PARTICIPANTS?

There are no expected risks for participants who take part in this study. However, some participants may experience some discomfort answering questions about meanings of one's own mortality or inconvenienced at having given up some of their time to participate in the research. If a participant does experience any discomfort due to participation in this research, they will be able to miss out discussions, questions or to withdraw from the study without providing a reason.

Moreover, for students from the University of Roehampton there is no compulsion or academic pressure to take part in the project, and should students decline to participate or subsequently withdraw, their course marks will not be adversely affected.

WHAT ARE POTENTIAL BENEFITS TO PARTICIPANTS?

There is no direct benefit to taking part in this study. However, the information gathered from this research will contribute towards improving our understanding of experiences of one’s own mortality and its impact on mental health. Prospectively, the measurement could contribute to enhancement of counselling provision.

CONFIDENTIALITY

All information provided will be kept confidential, and only accessible to members of the research team. All collection, storage and processing of data will comply with the principles of the Data Protection Act 1998, and has been approved under the procedures of the University of Roehampton’s Ethics Committee. All of the information provided will be stored securely and, where possible, anonymised. Under no circumstances will identifiable responses be provided to any third party. All data included in the publication or presentation of this research, and any subsequent research publications, will be fully anonymised to ensure that no individual is identifiable. Limits to confidentiality will apply in situations where research participants disclose information that they or someone else is at risk of harm. In such situations, it is the ethical obligation of the researcher to follow safeguarding procedures and where appropriate to disclose information to the appropriate authorities. In such situations, where possible, this will be discussed with participants before a suitable course of action is taken.

ANONYMITY AND DATA STORAGE

All data generated from this study will be stored securely to the highest possible standard of confidentiality. Anonymised data will be stored for an indefinite period of time following the study, and may be used for publication, presentation, or for subsequent research projects or data analyses. Audio recordings will be destroyed after ten years, in which time they might be used for other research projects and data analyses (at the discretion of the researcher).

DISSEMINATION OF FINDINGS

The results of this research study will be written up in partial fulfilment of the requirements for the Doctorate in Counselling Psychology from the University of Roehampton. The results of this research may be published in academic journals or presented at conferences.